REGISTRIES

EHE Global Patient Registry

A Natural History Study

The EHE Global Patient Registry empowers people with Epithelioid Hemangioendothelioma (EHE) to join together to improve our understanding of this ultra-rare sarcoma.

For more information on how to register, click here.

For Patients

Information collected during this study may be used to help provide opportunities for patients and researchers to collaborate in the rare disease community.

Read more here.

For Researchers

This is a unique rare disease patient registry. Are you interested in using our data to further your rare disease research?

Read more here.