SPAGN Member Groups
The network only is as strong as its members. SPAGN welcomes every sarcoma, GIST or desmoid patient group and individuals interested in sarcomas worldwide to become part of our network and thus strengthen it.
Why join SPAGN?
Enjoy information exchange with other members, receive SPAGN newsletters and briefings, an invitation to SPAGN’s annual meeting, short description incl. contact information of your organization on our website etc. But most of all: Join forces, because as a united international sarcoma community we all have a better chance to make our voices heard!
Do you want to apply for membership at SPAGN? Please fill out the Member Application Form.
Our members
Please find our member organizations listed below. It gives you a sense of SPAGN’s extensive reach and the notable work our members do. This can be in the most challenging of environments, for example where healthcare, medicines and equipment for sarcoma treatments and care do not exist, are in short supply or not accessible equitably. We know that by working together with other organizations and initiatives we can achieve more.
- Australia: Sock it to Sarcoma
- Austria: GIST Support Österreich
- Belgium: Cum Cura
- Bulgaria: GIST and STS Alliance for Patients - Bulgaria
- Bulgaria: TOGETHER FIGHTING SARCOMA
- Bulgaria: Sarcomafree Foundation
- Brazil: Desmóide Brasil | Associação Brasileira do Tumor Desmóide
- Curacao: Synovial Sarcoma Research Foundation
- Finland: Finnish GIST and Sarcoma Patient Network
- France: Info Sarcomes
- France: SOS Desmoide France
- Germany: Deutsche Sarkom-Stiftung/German Sarcoma Foundation
- Germany: SOS-Desmoid
- Germany: SMARCB1 e.V.
- Hungary: Érintettek Association
- Hungary: Recovering Together Association/Gyógyulj Velünk Egyesület
- India: Friends of Max GIST
- India: SPANDAN (part of V Care)
- India: DigiSwasthya Foundation
- India: Sachin Sarcoma Society
- Ireland: Sarcoma Cancer Ireland
- Israel: Israeli GIST Patients Organisation
- Italy: A.I.G. Associazione Italiana GIST
- Italy: Italian Desmoid Foundation
- Italy: Fondazione Paola Gonzato-Rete Sarcoma ETS
- Italy: MC4 in corsa per la vita!
- Italy: Orchestra per la Vita Onlus
- Japan: GISTERS
- Kenya: Henzo Kenya
- Macedonia: GIST Patient Group Macedonia
- Netherlands: Patientenplatform Sarcomen
- Netherlands: Chordoma Foundation Europe
- Norway: Sarkomer Norway
- Poland: Stow. Pomocy Chorym Na GIST
- Poland: Stow. Pomocy Chorym Na Miesaki "SARCOMA"
- Romania: HomeCare Association
- South America: Alianza GIST
- South Africa: Campaigning for Cancer
- Spain: Sarcoma Patients Spanish Association/Asociación Española de Afectados por Sarcoma (AEAS)
- Spain: FUNDACIÓN MARI PAZ JIMENEZ CASADO
- Spain: ASARGA – Association of Sarcomas Assistance Groups
- Sweden: GIST Sverige
- Sweden: Sarkomföreningen
- Switzerland: Swiss GIST Group
- Switzerland: Swiss Sarcoma
- Turkey: Genç Birikim Derneği & Youth Accumulation Association
- UK: Bone Cancer Research Trust
- UK: Desmoid Fibromatosis UK Patients & Caregivers
- UK: EHE Rare Cancer Charity
- UK: George Pantziarka TP53 Trust (GPTP53)
- UK: GIST Cancer UK and PAWS GIST
- UK: Sarcoma UK
- UK: The Myrovlytis Trust
- USA: Chondrosarcoma Foundation
- USA: Chordoma Foundation
- USA: Desmoid Tumour Research Foundation
- USA: GSI - GIST Support International
- USA: LeiomyoSarcoma Support & Direct Research Foundation
- USA: Make IT Better Agents - pediatric osteosarcoma nonprofit
- USA: National Leiomyosarcoma Foundation
- USA: Sarcoma Strong
- USA: The Liddy Shriver Sarcoma Initiative
- USA: The Life Raft Group
- USA: Sarcoma Alliance
- USA: Sarcoma Coalition
- USA: Sarcoma Foundation of America
- USA: Northwest Sarcoma Foundation
- USA: Rein in Sarcoma