Patient Advocacy @CTOS 2024
đź“Š Insights from CTOS 2024: Global Sarcoma Diagnosis Survey
At the 2024 CTOS conference, SPAGN presented preliminary findings from our Global Survey on Sarcoma Diagnosis Pathways. This survey explores the challenges faced by sarcoma patients, such as delays in diagnosis and misdiagnoses, and highlights opportunities for systemic improvements.
Take a closer look at the data below to understand the key trends and findings from the survey.
🔍 Why This Survey Matters
Understanding the real-world experience of sarcoma patients is crucial in advocating for improved diagnosis and care. The survey reveals critical gaps in the current diagnostic process and highlights the importance of timely intervention. By addressing these gaps, we can work towards better outcomes for sarcoma patients globally.
The Patient Advocacy Poster Wall
Do you have a great project which you would like to share with others?
Would you like to introduce your impressive sarcoma patient advocacy organization to an interested audience?
We’d like to use the lounge again this year to display a wide variety of sarcoma patient advocacy projects and organizations in the world – and to show what patient advocacy can achieve.
You are welcome to be a part of it, to add your poster to the poster wall and to present your organization or your lighthouse project.
What you need to do? Click the button below.
Discover Inspiring Sarcoma Advocacy Projects on the Poster Wall at CTOS 2024 and virtually!
We’re excited to showcase a wide variety of impactful sarcoma patient advocacy projects and organizations from around the world on our Poster Wall at CTOS 2024 and virtually. Step into the Patient Advocacy Lounge to see firsthand the incredible achievements of advocates in this space and learn how they’re making a difference.
Explore projects, connect with inspiring initiatives, and discover the power of patient advocacy. Click below to view the poster wall and dive into the world of sarcoma advocacy!
The Information Tables
We also encourage you to display brochures or materials from your organization on the designated tables. This opportunity is open to all patient groups attending CTOS, whether or not you are a member of SPAGN.
The SPAGN Patient Advocacy Reception
We invite you to join us for a relaxed and enjoyable gathering of patient representatives!
When: Thursday, November 14, 5:00 p.m.
Where: Patient Advocacy Lounge, Balboa ABC, Manchester Grand Hyatt San Diego
All patient representatives attending CTOS are warmly welcome. It's a great opportunity to make new connections, reconnect with familiar faces, and enjoy some friendly conversation. This reception is open to anyone interested in meeting and mingling with patient advocates. Feel free to share this invitation with other patient advocates, experts, and pharmaceutical representatives attending CTOS.
To help us plan, kindly register by emailing us at info@sarcoma-patients.org with your name, organization, and the number of attendees.
We look forward to a lively evening of conversations over drinks and snacks!
Any questions?
Please get in touch via info@sarcoma-patients.org.
Let's show what the sarcoma patient community can do and how powerful it is -
Working together, making a difference!
Photos: Uli Deck/Artis, Kelsey Chance/Unsplash