Bone Sarcoma Alliance

The SPAGN - Bone Sarcoma Alliance is an informal partnership initiative composed of

  • patient groups/organizations
  • patient/parent advocates
  • patient networks

 

The Bone Sarcoma Alliance operates under the motto 'working together, making a difference' as part of the SPAGN umbrella to:

BSA_Logo_2023_RZ (002)
  • To amplify the voice of ALL bone sarcoma patients beyond the specific type of bone sarcoma as well as to implement collaborations among them
  • Bring together the patients and advocates from the different bone sarcoma communities while continuing to work in each patient community for those areas which are disease-specific
  • Share experiences and learn from each other
  • Build “evidence” in order to accelerate advances in patient treatments and lives
  • Collaborate more effectively
  • To better engage with professionals on issues that are common to all bone sarcomas

Different diseases, but common concerns:

  • Problems with access to treatment
  • Late diagnosis
  • Quality of life
  • Late effects from treatment
  • Lack of research
  • Lack of support

Get in touch:

bonesarcoma@sarcoma-patients.org