patient support groups Archives - Page 3 of 3 - SPAGN - Sarcoma Patient Advocacy Global Network

I Lost My Son and Found My Purpose

September 6, 2023

We spoke with the founder of the first sarcoma organization in Bulgaria, Lidiya Vitanova, who lost her young son, Niki, to sarcoma. Lidiya talked to us about the sarcoma situation in her country as well as her motivation and goals for improving the outcomes of people diagnosed with sarcoma and other rare diseases.

Check It Out!

August 7, 2023

Sarcoma patient and patient advocate Roger Wilson shares his experience of finding a lump – what happened and what he learned.

When the Patient Becomes the Researcher

July 20, 2023

Dr. Sydney Stern, biomedical scientist and patient advocate, describes her personal journey as a patient with a rare tumor disease and her quest for answers through science. She calls for patients to get involved in research and outlines options for doing so.

How the Pandemic Produced a Sustainable Resource for Sarcoma Patients in India

April 20, 2023

A photo of four people, two women and two men, all members of the Sachin Sarcoma Society, posing for a photo in a hospital in India during the pandemic. All are wearing yellow ribbons to symbolise sarcoma awareness and companionship.

Sachin Sarcoma Society, a SPAGN Member Group based in India, shares a guest blog about building support networks and overcoming the challenges of the COVID-19 pandemic.