Some metaphors that matter – Are we rare? Are we warriors?

The use of metaphors is closely connected with cancer: We turn to them because literalness is sometimes terrifying. And because, within the comfort zone of language, we can save (or condemn) ourselves. Natalia Fernández, researcher into language of sarcoma patients, analyses why we resort to metaphors and pleads for humanizing our language.

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Reflecting on 2024: A Special Year for SPAGN

The year of the 15th anniversary of SPAGN has been a great success full of projects and partnerships for the benefit of sarcoma patients. 2024 showcases the wonderful development of the network since its creation. Our Chief Executive Kathrin Schuster looks back at the year with pride and sends a big thank you to all members, supporters and colleagues!

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Global Insights on Sarcoma Diagnosis: Preliminary Findings from SPAGN’s Survey

The Sarcoma Patients Advocacy Global Network (SPAGN) is shedding light on the complex and often lengthy journey to a correct sarcoma diagnosis through its Global Survey on Sarcoma Diagnosis Pathways. This initiative aims to capture real-world patient experiences worldwide. At CTOS 2024, preliminary data from over 880 respondents across 40 countries revealed critical insights. Key…

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Tools Anyone Can Use: Become a Social Media Superhero

Creating impactful social media content is essential for patient advocacy groups, but it can often feel like a time-consuming challenge. SPAGN, in collaboration with New Horizons GIST, is hosting a special webinar to empower advocates with tools that simplify and enhance the content creation process. 📅 When: December 6th, 2024 🕕 Time: 6 PM CET…

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“SPAGN Advocacy in Action Award 2025” & “Paola Gonzato Memory Award”

Call for Nominations  SPAGN is thrilled to announce the opening of nominations for the prestigious Advocacy in Action Award 2025 and the newly introduced Paola Gonzato Memory Award for impactful projects in sarcoma patient advocacy.   Advocacy in Action Award 2025 Since its inception in 2017, the Advocacy in Action Award has highlighted exceptional initiatives…

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SPAGN Annual Conference 2025

📋 Program 🎓 Travel Grants 📝 Registration 🏨 Venue 📍 Logistics We are thrilled to announce that the SPAGN Annual Conference 2025 will be held in Washington D.C., USA, from April 11-13, 2025. This will be our first conference in the United States, marking a significant milestone for our global community. Even more exciting, this…

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SPAGN Annual Conference 2025

We are thrilled to announce that the SPAGN Annual Conference 2025 will be held in Washington D.C., USA, from April 11-13, 2025. This will be our first conference in the United States, marking a significant milestone for our global community. This highly anticipated event will bring together patient advocates from around the world to discuss…

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Your Poster @CTOS 2024

Show Off Your Advocacy Work at CTOS 2024, to the broadest international community of sarcoma experts: Create and Submit a Poster! Please note: Our offer to print the posters has expired. But you are welcome to print your poster yourself and bring it with you to CTOS 2024! Sarcoma patient advocacy organizations are cordially invited…

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