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Join the SPAGN Editorial Blog Team: Volunteer Job Opportunity
Volunteer Opportunity: Editors for SPAGN Blog – Voices of Sarcoma Are you passionate about storytelling and making an impact in the sarcoma community? Join SPAGN’s Editorial Team and help shape our global blog, Voices of Sarcoma—and have fun doing it! SPAGN (Sarcoma Patient Advocacy Global Network) unites over 65 advocacy groups across five continents, amplifying…
Read MoreBulgaria: Sarcomafree Foundation
Bulgaria: Sarcomafree Foundation Back to members Organisation Profile The Sarcomafree Foundation is dedicated to raising worldwide awareness about sarcoma and providing essential funding for research and treatment on a global scale. Their primary aim is to support clinical research projects specifically tailored to address the unique needs of young adults and children battling this disease.…
Read MoreMy lumpy life as a young adult
“After a shower, I noticed an odd lump on my left hip. Two weeks passed, but Lumpy—the name I declared this mysterious lump—remained. Luckily, I had a when in doubt, check it out mentality…” Read about Matt’s sarcoma journey and find out why sarcoma is like skydiving.
Read MoreSpain: FUNDACIÓN MARI PAZ JIMENEZ CASADO
Spain: FUNDACIÓN MARI PAZ JIMENEZ CASADO Back to members Organisation profile The FUNDACIÓN MARI PAZ JIMÉNEZ CASADO (FMPJC) is an independent, non-profit organization with financial and functional autonomy, and whose scope of action is the Spanish territory. OUR MISSION To help people and groups in a situation of need, mainly those affected by a…
Read MoreSpain: Sarcoma Patients Spanish Association/Asociación Española de Afectados por Sarcoma (AEAS)
Spain: Sarcoma Patients Spanish Association/Asociación Española de Afectados por Sarcoma (AEAS) Back to members Organisation profile AEAS, the Sarcoma Patients Spanish Association, is a non profit organization that advocates on behalf of people affected by sarcoma. It was set up in 2008, in Madrid, by a group of sarcoma patients and their relatives, aiming to…
Read MoreSouth Africa: Campaigning for Cancer
South Africa: Campaigning for Cancer Back to members Organisation Profile Pioneering cancer advocacy in South Africa, Campaigning for Cancer lobbies for the promotion and protection of the rights of patients and those affected by cancer with regard to policy, healthcare costs and healthcare delivery. Campaigning for Cancer does this on an individual patient level -…
Read MoreRomania: HomeCare Association
HomeCare Association Back to members Contact Information HomeCare Association Covering breast and gynaecologic cancers including sarcomas 📧 grupsperantabrasov@yahoo.com Key Contacts Simona Ene (President) si_mi_ene@yahoo.com General Information Year of establishment: SPAGN member since: No. of members:
Read MorePoland: Stow. Pomocy Chorym Na Miesaki “SARCOMA”
Poland: Stow. Pomocy Chorym Na Miesaki “SARCOMA” Back to members Contact Information Stow. Pomocy Chorym Na Miesaki “SARCOMA” ul. Malborska 14/5 03-286 Warszawa Poland 📧 biuro@sarcoma.pl ☎ +48 608 335 326 www.sarcoma.pl Contact Person Kamil Dolecki Email: Kamil.Dolecki@sarcoma.pl Szymon Bubilek Email: Szymon.Bubilek@sarcoma.pl Pola Gmaj Email: Pola.Gmaj@sarcoma.pl Katarzyna Michniewska Email: Katarzyna.Michniewska@sarcoma.pl Aleksandra Tobota Email: Aleksandra.Tobota@sarcoma.pl General Information Year of establishment: SPAGN…
Read MorePoland: Stow. Pomocy Chorym Na GIST
Poland: Stow. Pomocy Chorym Na GIST Back to members Organisation Profile The Polish GIST Patients Support Association is a non profit, NGO representing GIST patients and their relatives. Our main goal is to promote all necessary knowledge to increase awareness concerning GIST. Thanks to participation in many Polish and International events we have possibilities to…
Read MoreNetherlands: Chordoma Foundation Europe
Netherlands: Chordoma Foundation Europe Back to members Organisation Profile The Chordoma Foundation is a nonprofit organization dedicated to curing chordoma. Started in the USA in 2007, the Chordoma Foundation is still the only existing organization that unites and represents chordoma patients. Given the rarity of this disease, and the resultant need to leverage all available…
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