Blog & News
Sweden: Sarkomföreningen
Sweden: Sarkomföreningen Back to members Organisation Profile Sarkomföreningen, The Swedish Sarcoma Association, was founded in 2015 and offers support for sarcomapatients, relatives and survivors. Our mission is also to increase awareness about the disease. We are about 300 paying members. Sarkomföreningen is…
Switzerland: Swiss GIST Group
Contact Information Swiss GIST Group/GIST Gruppe Schweiz/Groupe GIST Suisse Sterenweg 7, CH-6300 ZugTel. +41 (0)41 710 80 58Mail: gist@gist.chWeb: http://www.gist.ch/ Contact Person Martin Wettstein (President)Email: martin.wettstein@gist.ch Helga Meier Schnorf Email: gist@gist.ch Organisation Profile On January 14, 2010 the GIST-Group of Switzerland…
Turkey: Genç Birikim Derneği & Youth Accumulation Association
Turkey: Genç Birikim Derneği & Youth Accumulation Association Back to members Organisation Profile Youth Accumulation Association was established in 2006 in Muş (Turkey) by a group of young people in order to contribute to the social and personal development of young people.…
UK: “PAWS-GIST” (Paediatric Adolescent Wildtype Syndromic-GIST)
Contact Information “PAWS-GIST” (Paediatric Adolescent Wildtype Syndromic-GIST)Pennysfield Barn, Dauntsey, Chippenham, Wiltshire, SN15 4HL, UK Telephone Number incl. country code: Patient & Carer Helpline: +44 300 400 0000Website: www.gistsupportuk.com & www.pawsgistclinic.org SPAEN Contact: Jayne Bressington – Vice Chair – jayneandkim@aol.com Organisation Profile…
UK: Aggressive Fibromatosis Desmoid Tumour Information Page UK
Contact Information Aggressive Fibromatosis Desmoid Tumour Information Page (AF Information) Web: http://af-information.weebly.com Contact Person India Minton-Barker Email: afibromatosis@hotmail.co.uk
UK: Bone Cancer Research Trust
Contact Information Bone Cancer Research Trust 10 Feast Field Horsforth Leeds LS18 4TJ UK Tel. +44 (0) 113 258 5934 Email: info@bcrt.org.uk Web: https://www.bcrt.org.uk/ Facebook: BoneCancerResearchTrust Twitter: @BCRT Instagram: @bonecancerresearch Organisation Profile Our Vision: A world where primary bone cancer is…
UK: Chordoma UK
Contact Information Web: http://www.chordoma-uk.org c/o UCL Cancer Institute Research Trust72 Huntley Street, London, WC1E 6BT Tel ++44 (0)20 7679 6325 Chordoma UK is administered as part of the UCL Cancer Institute Research Trust, a registered charity (RCN 1135220) Contact Person Gerald…
UK: GIST Cancer UK and PAWS GIST
Contact Information Patient Group Name: GIST Cancer UK & PAWS-GISTPennysfield Barn, Dauntsey, Chippenham, Wiltshire, SN15 4HL, UK Patient & Carer Helpline: +44 300 400 0000Website: www.gistcancer.org.uk & www.pawsgistclinic.org SPAEN Contact: Jayne Bressington – Vice Chair – jayneb@gistcancer.org.uk Organisation Profile GIST Cancer UK…
UK: Guy Francis Bone Cancer Research Fund
Guy Francis Bone Cancer Research Fund Acomb House 23, Front Street Acomb York YO24 3BW Tel. +44 (0)1904 799151Fax +44 (0)1904 783765 Email: info@gfbonecancer.org.ukWeb: www.gfbonecancer.org.uk Contact Person Mike Francis, ChairmanEmail: mike.francis@gfbonecancer.org.uk Organisation Profile Founded in 2002 by teenage bone…
UK: Sarcoma UK
Contact Information Sarcoma UK49-51 East RoadLondonN1 6AHUnited Kingdom Email: info@sarcoma.org.ukWeb: https://sarcoma.org.uk/ Contact Person Roger Wilson (Honorary President)Email: spaen@sarcomauk.org Richard Davidson (CEO)Email: info@sarcoma.org.uk Organisation Profile Sarcoma UK is a national charity that funds vital research, offers support for anyone affected by…
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