Blog & News
Netherlands: Patientenplatform Sarcomen
Email: info@patientenplatformsarcomen.nlWeb: http://www.patientenplatformsarcomen.nl Organisation Profile In 2003 a Dutch patient organisation was established for GIST patients. This group flourished and grew steadily, reaching over 450 members in 2016, including Dutch speaking patients in Belgium. In 2012 a patient organisation was created for…
Norway: Sarkomer Norway
Contact Information Sarkomer Norway Mail: info@sarkomer.no Website: http://sarkomer.no/ Contact Person Cathrine Moen-Nilsen Email: cathrine@sarkomer.no Organisation Profile Sarkomer was founded on the 1st of October 2011 and is a nationwide patient organisation and a support group for everyone affected by sarcoma. We offer…
Poland: Stow. Pomocy Chorym Na GIST
Contact Information Stow. Pomocy Chorym Na GIST 01 652 Warszawa, ul. Potocka 14 Tel. (22) 832 21 03 Email: stowarzyszenie@gist.plWeb: www.gist.pl Contact Person Piotr Fonrobert Organisation Profile The Polish GIST Patients Support Association is a non profit, NGO representing GIST…
Poland: Stow. Pomocy Chorym Na Miesaki “SARCOMA”
Contact Information Stow. Pomocy Chorym Na Miesaki “SARCOMA” ul. Malborska 14/5 03-286 Warszawa Poland Tel. +48 608 335 326 Email: biuro@sarcoma.pl Web: www.sarcoma.pl Contact Person Kamil Dolecki Email: Kamil.Dolecki@sarcoma.pl Szymon Bubilek Email: Szymon.Bubilek@sarcoma.pl Pola Gmaj Email: Pola.Gmaj@sarcoma.pl Katarzyna Michniewska Email: Katarzyna.Michniewska@sarcoma.pl Aleksandra Tobota Email: Aleksandra.Tobota@sarcoma.pl
Romania: HomeCare Association
Contact Information HomeCare Association covering breast and gynaecologic cancers including sarcomas Email: grupsperantabrasov@yahoo.com Contact Person Simona Ene (President) Email: si_mi_ene@yahoo.com
Romania: Romanian Rare Cancers Association – RCArare
Contact Information Romanian Rare Cancers Association – RCArare Organisation ProfileFounded in June 2011; Member of The Romanian National Alliance for Rare Diseases; Joined the European Partnership for Action Against Cancer – ECPC (to identify and promote appropriate solutions and to share best…
Sweden: GIST Sverige
Contact Information GIST Sverige Email: gistcancer@telia.com
Sweden: Sarkomföreningen
Sweden: Sarkomföreningen Back to members Organisation Profile Sarkomföreningen, The Swedish Sarcoma Association, was founded in 2015 and offers support for sarcomapatients, relatives and survivors. Our mission is also to increase awareness about the disease. We are about 300 paying members. Sarkomföreningen is…
Switzerland: Swiss GIST Group
Contact Information Swiss GIST Group/GIST Gruppe Schweiz/Groupe GIST Suisse Sterenweg 7, CH-6300 ZugTel. +41 (0)41 710 80 58Mail: gist@gist.chWeb: http://www.gist.ch/ Contact Person Martin Wettstein (President)Email: martin.wettstein@gist.ch Helga Meier Schnorf Email: gist@gist.ch Organisation Profile On January 14, 2010 the GIST-Group of Switzerland…
Turkey: Genç Birikim Derneği & Youth Accumulation Association
Turkey: Genç Birikim Derneği & Youth Accumulation Association Back to members Organisation Profile Youth Accumulation Association was established in 2006 in Muş (Turkey) by a group of young people in order to contribute to the social and personal development of young people.…