Blog & News

Italy: Associazione ONLUS: Il pensatore Matteo Amitrano

Feb 25, 2011 |

Contact Information Associazione ONLUS: Il pensatore: Matteo Amitrano Email: info@ilpensatoreonlus.itWeb: http://www.ilpensatoreonlus.it/    Organisation Profile  The mission of the group is to stimulate research and support of young patients (children and adolenscents) with osteosarcomas.

Italy: Fondazione Paola Gonzato-Rete Sarcoma ETS

Feb 25, 2011 |

Contact Information Fondazione Paola Gonzato-Rete Sarcoma ETS Email: apaola.onlus@yahoo.it Web: www.retesarcoma.it Contact Person Ornella Gonzato, President Email: ornellagonzato@yahoo.it Paolo Casali, Chairman Email: paolo.casali@istitutotumori.mi.it Organisation Profile Trust Paola Gonzato-Rete Sarcoma Onlus is the new denomination of Associazione Paola per i tumori muscolo-scheletrici, which…

Italy: LAM Italia ONLUS

Feb 25, 2011 |

Contact Information LAM Italia ONLUS/Italian Association of LymphangioleiomyomatosisUfficio Postale33050 Pavia di UdineItaly Tel. +39 335 5380863Email: info@lam-italia.orgWeb: http://www.lam-italia.org   Contact Person Iris Bassi (President)Email: info@lam-italia.org   Organisation Profile  LAM Italy aims to support an effective treatment and cure of lymphangioleiomyomatosis (LAM). Main…

Italy: Le Ali Onlus and COO-BS (Centro di Oncologia Ortopedica – Brescia)

Feb 25, 2011 |

Contact Information   Le Ali Onlus Web: http://www.lealionlus.org/Email: info@lealionlus.org                   COO – Centro di Oncologia Ortopedica – Brescia: Web: www.coobs.itEmail: ippolito@coobs.it    Contact Person Le Ali Onlus President: Francesca Piccolo:  frapiccol@libero.it COO-BS (Centro di…

Italy: Luogo di incontro per scambiarsi informazioni sul tumori Desmoide o Fibromatosi agressiva

Feb 25, 2011 |

Contact Information Luogo di incontro per scambiarsi informazioni sul tumori Desmoide o Fibromatosi agressiva Email: elisaruo@yahoo.itWeb: www.desmoide.it     Contact Person Elisa Baldoin (Patient)Email: elisaruo@yahoo.it

Italy: Noi per Voi per il Meyer Onlus – Associazione di Genitori, contro le leucemie e i tumori infantili

Feb 25, 2011 |

Contact Information Noi per Voi per il Meyer Onlus – Associazione di Genitori, contro le leucemie e i tumori infantili Tel: +39 (0)55-580030Tel/Fax +39 (0)55-414433Email: info@noipervoi.orgWeb: http://www.noipervoi.org Organisation Profile  Noi per Voi is an association of parents against leukemia and childhood cancers,…

Italy: RUKIJE un raggio di sole – Associazione pazienti oncologici dell’aparato muscolo-scheletrico

Feb 25, 2011 |

Contact Information RUKIJE un raggio di sole – Associazione pazienti oncologici dell’aparato muscolo-scheletricoVia Fontanelle di Sant’Apollaria, 16 cap 00039 Zagarolo (Roma)Italy Email: info@rukije.orgWeb: www.rukije.org Contact Person Monica Morelli (President) Email: monicamorelli@rukije.org  Organisation Profile  The activities of the association are addressed to people…

Italy: Soft Tissue Sarcoma People’s Organization

Feb 25, 2011 |

Contact Information Soft Tissue Sarcoma People’s OrganizationWeb: http://www.stsp.org/    Organisation Profile Soft Tissue Sarcoma People’s Organization is a web-site with information, resources and personal experiences realting to soft tissue sarcoma and contains two main areas: The first area of this web-site includes…

Netherlands: Chordoma Foundation Europe

Feb 25, 2011 |

Email: nederland@chordomafoundation.orgWeb: http://www.chordoma.org  Organisation Profile The Chordoma Foundation is a nonprofit organization dedicated to curing chordoma. Started in the USA in 2007, the Chordoma Foundation is still the only existing organization that unites and represents chordoma patients. Given the rarity of this…

Netherlands: Contactgroep GIST Nederland – België

Feb 25, 2011 |

Contact Information   Contactgroep GIST Nederland – BelgiëPostbus 8152 3503 RD UtrechtTel.: (030) 291 60 90Email: info@contactgroepgist.nlWeb: http://www.contactgroepgist.nl/   Organisation Profile Established in 2003, Contactgroep GIST is the organization for Dutch and Flemish speaking GIST patients (and their families), with members in…