Blog & News
WWW: Global GIST Network
Contact Information Global GIST Network Email: liferaft@liferaftgroup.orgWeb: http://www.globalgist.org Contact Person The Global GIST Network is coordinated by Gilles Frydman, President of ACOR (Association of Online Cancer Resources), Markus Wartenburg, Spokesperson for Das Lebenshaus (House of Life) and Norman Scherzer, Executive Director…
Belgium: Contactgroep GIST Nederland – België
Contact Information Belgium Contact Groep GIST Contact Person Kris HeymanEmail: voorzitter@contactgroepgist.be
France: A.F.P.G. “Ensemble contre le GIST”
Contact Information Association Française des Patients du GIST « Ensemble contre le GIST »Email: info@ensemblecontrelegist.comWeb: http://www.ensemblecontrelegist.com Contact Person Estelle Lecointe (President) Organisation Profile A.F.P.G. « Ensemble contre le GIST » was created in October 2005, several months after Estelle’s own…
France: SOS Desmoide France
Contact Information SOS Desmoide France 45, rue René La Combe, 49 100 Angers, FranceWeb: www.sos-desmoide.asso.frEmail : association.sos-desmoide@laposte.net Contact Person Karine le Bobinnec (President) Organisation Profile Its aim: like most PAGs, it is to develop the awareness of this disease, stimulate research,…
Germany: Deutsche Sarkom-Stiftung/German Sarcoma Foundation
Contact Information Deutsche Sarkom-Stiftung/German Sarcoma Foundation Caspar-Bender-Weg 31D-61200 Wölfersheim / GermanyHotline.: ++49 (0)700-4884-0700 (GIST, Sarcomas)Direct phone: +49 6036 9836 142Mail: info@sarkome.deWeb: www.sarkome.deFacebook & Twitter: @Sarkomstiftung SPAEN Contact Person Markus WartenbergEmail: markus.wartenberg@sarkome.de Kai PilgermannEmail: kai.pilgermann@sarkome.de Organisation Profile The Foundation was launched with…
Germany: SOS Desmoid
Contact Information SOS DesmoidMail: info@sos-desmoid.deWeb: www.sos-desmoid.de Contact Person Christina BaumgartenEmail: cbaumgarten@sos-desmoid.de Organisation Profile sos-desmoid was founded as a charitable organization on 21st November 2009 in Mannheim, Germany. It was initiated by Prof. Peter Hohenberger (an oncologist and researcher of desmoid…
Hungary: Gasztrointestinális Stróma Tumor
Contact Information Gasztrointestinális Stróma Tumor Web: www.gist.hu
Israel: Israeli GIST Patients Organisation
Contact Information Israeli GIST Patients Organisation Web: http://www.gist.org.il/ (Hebrew) Contact Person Avi Zigdon, ChairmanEmail: gist.israel07@gmail.com Organisation Profile The Israeli GIST Patients Organization is operating since Oct. 2007 in order to bring GIST patients the most updated information about new drugs,…
Italy: A.I.G. Associazione Italiana GIST
Contact Information A.I.G. ASSOCIAZIONE ITALIANA GIST OnlusPostal address: Casella Postale 55 Pavia Centro, 27100 PaviaLegal address: c/o Fondazione IRCCS Istituto Nazionale dei Tumori, Via G. Venezian 1, 20133 MilanoWeb: http://www.gistonline.itEmail: info@gistonline.it Contact Person Barbara Tamagni (Director)Email : barbaratamagni@yahoo.it Organisation Profile A.I.G.…
Italy: ASSOCIAZIONE “ALDO ARIENTI AMICI C.O.O – ONLUS”
Contact Information ASSOCIAZIONE “ALDO ARIENTI AMICI C.O.O – ONLUS”c/o U.O. COO – Chirurgia Oncologica OrtopedicaP.za Cardinal Ferrari 120122 MilanoItaly Tel. +39 (0)258296667Email: arienti-pini@gpini.itWeb: http://www.gpini.it/servizi/associazioni/ARIENTI/index.html Organisation Profile The Association supports adult and paediatric sarcoma patients in cooperation with the orthopedic institute Gaetano…