Blog & News
USA: The Karen Wyckoff Rein in Sarcoma Foundation (KWRISF)
Contact Information The Karen Wyckoff Rein in Sarcoma Foundation (KWRISF)3312 Richmond Avenue Shoreview, Minnesota, 55126-3842Email: info@reininsarcoma.orgWeb: http://www.reininsarcoma.org Organisation ProfileThe Karen Wyckoff Rein in Sarcoma Foundation (KWRISF) is a resource for families touched by sarcomas, an uncommon and often lethal group of bone…
USA: The Liddy Shriver Sarcoma Initiative
Contact Information The Liddy Shriver Sarcoma Initiative17 Bethea Drive Ossining, New York 10562-1620 Phone: +1 (914) 762-3251 Fax: +1 (914) 941-9181Email: info@sarcomahelp.orgWeb: http://sarcomahelp.org Contact Person Beverly Shriver (Co-founder), Email: beverly@sarcomahelp.org Bruce Shriver (Co-founder), Email: bruce@sarcomahelp.org Organisation Profile The mission of…
WWW: Global GIST Network
Contact Information Global GIST Network Email: liferaft@liferaftgroup.orgWeb: http://www.globalgist.org Contact Person The Global GIST Network is coordinated by Gilles Frydman, President of ACOR (Association of Online Cancer Resources), Markus Wartenburg, Spokesperson for Das Lebenshaus (House of Life) and Norman Scherzer, Executive Director…
Belgium: Contactgroep GIST Nederland – België
Contact Information Belgium Contact Groep GIST Contact Person Kris HeymanEmail: voorzitter@contactgroepgist.be
France: A.F.P.G. “Ensemble contre le GIST”
Contact Information Association Française des Patients du GIST « Ensemble contre le GIST »Email: info@ensemblecontrelegist.comWeb: http://www.ensemblecontrelegist.com Contact Person Estelle Lecointe (President) Organisation Profile A.F.P.G. « Ensemble contre le GIST » was created in October 2005, several months after Estelle’s own…
France: SOS Desmoide France
Contact Information SOS Desmoide France 45, rue René La Combe, 49 100 Angers, FranceWeb: www.sos-desmoide.asso.frEmail : association.sos-desmoide@laposte.net Contact Person Karine le Bobinnec (President) Organisation Profile Its aim: like most PAGs, it is to develop the awareness of this disease, stimulate research,…
Germany: Deutsche Sarkom-Stiftung/German Sarcoma Foundation
Contact Information Deutsche Sarkom-Stiftung/German Sarcoma Foundation Caspar-Bender-Weg 31D-61200 Wölfersheim / GermanyHotline.: ++49 (0)700-4884-0700 (GIST, Sarcomas)Direct phone: +49 6036 9836 142Mail: info@sarkome.deWeb: www.sarkome.deFacebook & Twitter: @Sarkomstiftung SPAEN Contact Person Markus WartenbergEmail: markus.wartenberg@sarkome.de Kai PilgermannEmail: kai.pilgermann@sarkome.de Organisation Profile The Foundation was launched with…
Germany: SOS Desmoid
Contact Information SOS DesmoidMail: info@sos-desmoid.deWeb: www.sos-desmoid.de Contact Person Christina BaumgartenEmail: cbaumgarten@sos-desmoid.de Organisation Profile sos-desmoid was founded as a charitable organization on 21st November 2009 in Mannheim, Germany. It was initiated by Prof. Peter Hohenberger (an oncologist and researcher of desmoid…
Hungary: Gasztrointestinális Stróma Tumor
Contact Information Gasztrointestinális Stróma Tumor Web: www.gist.hu
Israel: Israeli GIST Patients Organisation
Contact Information Israeli GIST Patients Organisation Web: http://www.gist.org.il/ (Hebrew) Contact Person Avi Zigdon, ChairmanEmail: gist.israel07@gmail.com Organisation Profile The Israeli GIST Patients Organization is operating since Oct. 2007 in order to bring GIST patients the most updated information about new drugs,…