Blog & News
Belgium: Contactgroep GIST Nederland – België
Contact Information Belgium Contact Groep GIST Contact Person Kris HeymanEmail: voorzitter@contactgroepgist.be
France: A.F.P.G. “Ensemble contre le GIST”
Contact Information Association Française des Patients du GIST « Ensemble contre le GIST »Email: info@ensemblecontrelegist.comWeb: http://www.ensemblecontrelegist.com Contact Person Estelle Lecointe (President) Organisation Profile A.F.P.G. « Ensemble contre le GIST » was created in October 2005, several months after Estelle’s own…
France: SOS Desmoide France
Contact Information SOS Desmoide France 45, rue René La Combe, 49 100 Angers, FranceWeb: www.sos-desmoide.asso.frEmail : association.sos-desmoide@laposte.net Contact Person Karine le Bobinnec (President) Organisation Profile Its aim: like most PAGs, it is to develop the awareness of this disease, stimulate research,…
Germany: Deutsche Sarkom-Stiftung/German Sarcoma Foundation
Contact Information Deutsche Sarkom-Stiftung/German Sarcoma Foundation Caspar-Bender-Weg 31D-61200 Wölfersheim / GermanyHotline.: ++49 (0)700-4884-0700 (GIST, Sarcomas)Direct phone: +49 6036 9836 142Mail: info@sarkome.deWeb: www.sarkome.deFacebook & Twitter: @Sarkomstiftung SPAEN Contact Person Markus WartenbergEmail: markus.wartenberg@sarkome.de Kai PilgermannEmail: kai.pilgermann@sarkome.de Organisation Profile The Foundation was launched with…
Germany: SOS Desmoid
Contact Information SOS DesmoidMail: info@sos-desmoid.deWeb: www.sos-desmoid.de Contact Person Christina BaumgartenEmail: cbaumgarten@sos-desmoid.de Organisation Profile sos-desmoid was founded as a charitable organization on 21st November 2009 in Mannheim, Germany. It was initiated by Prof. Peter Hohenberger (an oncologist and researcher of desmoid…
Hungary: Gasztrointestinális Stróma Tumor
Contact Information Gasztrointestinális Stróma Tumor Web: www.gist.hu
Israel: Israeli GIST Patients Organisation
Contact Information Israeli GIST Patients Organisation Web: http://www.gist.org.il/ (Hebrew) Contact Person Avi Zigdon, ChairmanEmail: gist.israel07@gmail.com Organisation Profile The Israeli GIST Patients Organization is operating since Oct. 2007 in order to bring GIST patients the most updated information about new drugs,…
Italy: A.I.G. Associazione Italiana GIST
Contact Information A.I.G. ASSOCIAZIONE ITALIANA GIST OnlusPostal address: Casella Postale 55 Pavia Centro, 27100 PaviaLegal address: c/o Fondazione IRCCS Istituto Nazionale dei Tumori, Via G. Venezian 1, 20133 MilanoWeb: http://www.gistonline.itEmail: info@gistonline.it Contact Person Barbara Tamagni (Director)Email : barbaratamagni@yahoo.it Organisation Profile A.I.G.…
Italy: ASSOCIAZIONE “ALDO ARIENTI AMICI C.O.O – ONLUS”
Contact Information ASSOCIAZIONE “ALDO ARIENTI AMICI C.O.O – ONLUS”c/o U.O. COO – Chirurgia Oncologica OrtopedicaP.za Cardinal Ferrari 120122 MilanoItaly Tel. +39 (0)258296667Email: arienti-pini@gpini.itWeb: http://www.gpini.it/servizi/associazioni/ARIENTI/index.html Organisation Profile The Association supports adult and paediatric sarcoma patients in cooperation with the orthopedic institute Gaetano…
Italy: Associazione Aurora Tomaselli
Contact Information Associazione Aurora Tomaselli/Association Aurora Tomaselli Research and Prevention Via Valle Borbera 82 00141 Roma Italy Tel. +39 (0)68177637Email: info@auroratomaselli.orgWeb: http://www.auroratomaselli.org Organisation Profile The group is focussing on research and prevention of osteosarcomas.