Blog & News
USA: Beat Sarcoma
Contact Information Beat Sarcoma76 Ellsworth Street San Francisco, CA 94110, USATel.: +1 (415) 826 0474Email: info@beatsarcoma.orgWeb: www.beatsarcoma.org Organisation Profile Beat Sarcoma is a volunteer initiative, launched in 2007 by a sarcoma patient, to help increase awareness about sarcomas, raise funds for research…
USA: Chordoma Foundation
Contact Information Chordoma Foundation PO Box 2127 Durham, NC 27702-2127USAEmail: info@chordoma.orgWeb: http://www.chordoma.org/ Contact Person Josh Sommer (Excecutive Director)Email: josh@chordoma.org Hans Keulen (European liaison)Email: hans@chordoma.org Organisation Profile About ChordomaChordoma is a relentless and difficult to treat bone cancer that occurs in the head…
USA: GSI – GIST Support International
Contact Information GIST Support International (GSI)12 Bomaca DriveDoylestown, PA 18901 Tel.: +1 215- 340-9374Email: gsi@gistsupport.orgWeb: http://www.gistsupport.org/ Contact Person Barbara Doré (Board Member)Email: barbara@gistsupport.org Julie Royster (Science Co-ordinator)Email: julie@gistsupport.org Organisation Profile GIST Support International (GSI) is an all-volunteer group of patients with…
USA: Life Raft Group
Contact Information The Life Raft Group155 Route 46 West, Suite 202 Wayne, NJ 07470 USA Tel.: 973-837-9092Fax: 973-837-9095Email: liferaft@liferaftgroup.orgWeb: www.liferaftgroup.org Contact Person Norman Scherzer (Executive Director)Email: nscherzer@liferaftgroup.org Organisation Profile The Life Raft Group (LRG) is a non-profit organization providing support,…
USA: Sarcoma Alliance
Contact Information Sarcoma Alliance775 East Blithedale, #334Mill Valley, CA 94941Tel.: (415) 381-7236 Fax: (415) 381-7235Email: info@sarcomaalliance.orgWeb: www.sarcomalliance.org Organisation ProfileThe Sarcoma Alliance strives to improve the lives of people affected by sarcoma through accurate diagnosis, improved access to care, guidance, education and…
USA: Sarcoma Foundation of America
Contact Information Sarcoma Foundation of America 9884 Main Street Damascus, Maryland 20872 Tel: ( +1) 301-253-8687 Fax: ( +1) 301-253-8690Email: info@curesarcoma.org Web: http://www.curesarcoma.org/ Organisation Profile The mission of the Sarcoma Foundation of America (SFA) is to advocate for increased research to find…
USA: The Desmoid Tumour Research Foundation (DTRF)
Contact Information The Desmoid Tumour Research FoundationP.O. Box 273Suffern, New York 10901Email: info@dtrf.orgWeb: http://www.dtrf.org Contact Person Anna Grenne, PhD, DTRF Research Director Email: anna@dtrf.org Organisation Profile The Desmoid Tumor Research Foundation (DTRF) was founded in September, 2005. Mission The Desmoid…
USA: The Karen Wyckoff Rein in Sarcoma Foundation (KWRISF)
Contact Information The Karen Wyckoff Rein in Sarcoma Foundation (KWRISF)3312 Richmond Avenue Shoreview, Minnesota, 55126-3842Email: info@reininsarcoma.orgWeb: http://www.reininsarcoma.org Organisation ProfileThe Karen Wyckoff Rein in Sarcoma Foundation (KWRISF) is a resource for families touched by sarcomas, an uncommon and often lethal group of bone…
USA: The Liddy Shriver Sarcoma Initiative
Contact Information The Liddy Shriver Sarcoma Initiative17 Bethea Drive Ossining, New York 10562-1620 Phone: +1 (914) 762-3251 Fax: +1 (914) 941-9181Email: info@sarcomahelp.orgWeb: http://sarcomahelp.org Contact Person Beverly Shriver (Co-founder), Email: beverly@sarcomahelp.org Bruce Shriver (Co-founder), Email: bruce@sarcomahelp.org Organisation Profile The mission of…
WWW: Global GIST Network
Contact Information Global GIST Network Email: liferaft@liferaftgroup.orgWeb: http://www.globalgist.org Contact Person The Global GIST Network is coordinated by Gilles Frydman, President of ACOR (Association of Online Cancer Resources), Markus Wartenburg, Spokesperson for Das Lebenshaus (House of Life) and Norman Scherzer, Executive Director…