Blog & News
LeiomyoSarcoma Support & Direct Research Foundation
Contact Information LeiomyoSarcoma Support & Direct Research FoundationPost Office Box 52697Tulsa, Oklahoma 74152Phone: 1-866-912-2730Email: 2lmsdr@gmail.comwww.LMSDR.orgFacebook support group: https://www.facebook.com/groups/lmsdr/ Organisation Profile
Hungary: Recovering Together Association/Gyógyulj Velünk Egyesület
Contact Information Recovering Together Association/Gyógyulj Velünk Egyesület (RTA/GYVE)Szent Laszlo Korhaz (Hospital), Tuzmadar Haz1097, BudapestHungary+36309227797Email: info@gyve.huWeb: www.gyve.hu Facebook: https://www.facebook.com/egyesulet.gyogyuljvelunk Youtube: https://www.youtube.com/channel/UC-N4WM4D81cn3NwuuCyK0JA Contact Person Zoltan Kalo (Patient & Board Member/ International relations)E-Mail: zoltankalo@yahoo.com+36706627092 Organisation Profile The Recovering Together Association was created to…
South Africa: Campaigning for Cancer
Contact Information Campaigning for CancerWebsite: www.campaign4cancer.co.zaEmail: info@campaign4cancer.co.za Postal Address44 Forbes StreetFellside2192JohannesburgSouth Africa Contact PersonMicaela DanielsEmail: Micaela@campaign4cancer.co.za Organisation Profile Pioneering cancer advocacy in South Africa, Campaigning for Cancer lobbies for the promotion and protection of the rights of patients and those affected…
USA: Chordoma Foundation
Contact Information Chordoma Foundation PO Box 2127 Durham, NC 27702-2127USAPhone: +1 919-809-6779Email: info@chordoma.orgWeb: http://www.chordoma.org/ Contact Person Shannon LozinskyDirector Patient Services E-Mail: shannon@chordoma.org Organisation Profile Chordoma is a rare cancer that grows in the bones of the skull and spine. It can affect…
Italy: Orchestra per la Vita Onlus
Contact Information Orchestra per la Vita Onlus Email: info@orchestraperlavita.orgWeb: www.orchestraperlavita.org Contact Person Leda Berto (President) Mail: info@orchestraperlavita.org Andrea Bolzicco Mail: andrea.bolzicco@orchestraperlavita.org Organisation Profile Orchestra per la Vita Onlus has supported the Epithelioid Sarcoma research at the National Cancer Research center (IRCCS…
Switzerland: Swiss GIST Group (2)
Contact Information Das Lebenshaus e.V.Swiss GIST Group/GIST Gruppe Schweiz Sterenweg 7, CH-6300 ZugTel. +41 (0)41 710 80 58Fax +41 (0)41 710 80 78Mail: gist@gist.chWeb: http://www.gist.ch/ Contact Person Martin Wettstein (President)Email: martin.wettstein@gist.ch Helga Meier Schnorf Email: gist@gist.ch Organisation Profile On January 14,…
UK: Desmoid Fibromatosis UK Patients & Caregivers
Contact Information https://www.facebook.com/groups/716472531722406/ [Closed group]Facebook: https://www.facebook.com/groups/142693282944740/ Contact Person Lisa PascoeEmail: lisa.desmoiduniteduk@gmail.com Organisation Profile Desmoid Fibromatosis Patients & Carers U.K ( DFPCUK ) is here to empower, support and educate patients through and beyond their diagnosis of a desmoid tumour. We currently have…
USA: Desmoid Tumour Research Foundation
Contact Information USA: Desmoid Tumour Research Foundation Contact Person Organisation Profile Soon to come…
Kenya: Henzo Kenya
Contact Information Henzo KenyaP.O. BOX 1008 – 00517 NAIROBI, KENYATel: +254 733-963 242Website: www.henzokenya.or.keEmail: info@henzokenya.or.ke SPAEN Contact Ferdinand Mwangura (Chairman)Email: chairman@henzokenya.or.ke Group Profile Henzo Kenya was an idea realised by three patients and two volunteers out of a need for emotional support…
Australia: Erik Hausoul Sarcoma Foundation
Contact Information Erik Hausoul Sarcoma Foundation Post Office Box 154Richmond NSW 2753Australia Tel.: When calling from Australia please use: (02) 45612012 Tel.: When calling from outside Australia please use: +61 2 4561 2012Email: info@erikhausoulsarcomafoundation.comWeb: http://erikhausoulsarcomafoundation.webs.com/ Organisation Profile The Vision of the…