Blog & News
SPAEN Advocacy in Action Award 2017: And the award goes to…
Patient advocacy ensures that people are heard, take action and ultimately improve situations, achieve changes or help to fulfil unmet medical needs. We decided that it is time to shout out about how important patient advocacy in sarcomas is –…
2018 SPAEN Annual Conference: 3-4 February 2018, Milan/Italy
SPAEN Annual Conference combined with ESMO GIST/Sarcoma expert meeting in 2018 SPAEN is very excited that for the first time, the SPAEN Annual Conference 2018 will be held combined with a professional meeting. SPAEN and European Society of Medical Oncology (ESMO) have…
7th SPAEN Annual Conference, September 8-10, 2016 in Warsaw, Poland
Learning, teaching, sharing and a great sense of community Once again, the community of patient advocates for sarcomas, GIST and desmoids have come together for another successful SPAEN Annual Conference from September 8-10, 2016. This year, Poland was the host country, welcoming…
Annual Conferences
Previous SPAEN Conferences 8th SPAEN Annual Conference 2018 Milan/ItalyThe SPAEN Annual Conference 2018 was held – for the first time ever – in conjunction with a professional meeting. SPAEN and European Society of Medical Oncology (ESMO) have agreed to combine their meetings…
Statutes
Blindtext Ich bin Blindtext. Von Geburt an. Ein trauriges Leben ist das. Ich kenne weder Erzeuger noch Autor. Irgendwann haben sie mich in die Welt gesetzt, und seitdem werde ich herum gereicht. Meine Eltern bekennen sich nicht einmal zu mir. Ich stehe…
Spain: ASARGA – Associacion Sarcomas of Galicia
Contact Information ASARGA – Associacion Sarcomas of Galicia Email: secretaria@asarga.es Web: https://www.asarga.es/ Tel.: +34900801117 Organisation profile A non-profit association that brings together those affected with any type of Sarcoma in Galicia and throughout Spain. We provide support to the people who suffer…
Spain: FUNDACIÓN MARI PAZ JIMENEZ CASADO
Contact Information FUNDACIÓN MARI PAZ JIMENEZ CASADOPlaza Valparaiso, nº 4 Escalera Derecha – 5º G 28016 Madrid Email: info@fundacionmaripazjimenez.orgWeb: http://www.fundacionmaripazjimenez.org/ Contact Person Alberto Martinez Gutierrez (Patron and Treasurer)Email: almartinez@fundacionmaripazjimenez.org Organisation profile The FUNDACIÓN MARI PAZ JIMÉNEZ CASADO (FMPJC) is an independent, non-profit…
USA: Sarcoma Coalition
Contact Information https://sarcomacoalition.us/ Contact Person Annie Achee, Member of the Sarcoma Coalition Steering CommitteeEmail: annieachee@aol.com Organisation Profile The Sarcoma Coalition is comprised of Patient Advocacy organizations and foundations that represent a cross-section of sarcoma subtypes or a pan-sarcoma group. There is no individual…
USA: Sarcoma Coalition
Contact Information https://sarcomacoalition.us/ Contact Person Annie Achee, Member of the Sarcoma Coalition Steering CommitteeEmail: annieachee@aol.com Organisation Profile The Sarcoma Coalition is comprised of Patient Advocacy organizations and foundations that represent a cross-section of sarcoma subtypes or a pan-sarcoma group. There is…
USA: Sarcoma Foundation of America
USA: Sarcoma Foundation of America Back to members Organisation Profile Mission The mission of the Sarcoma Foundation of America (SFA) is to advocate for sarcoma patients by funding research and by increasing awareness about the disease. The organization raises money…