Blog & News

Euro Ewing 2012

Sep 1, 2016 |

Trial for the Treatment of Newly Diagnosed Ewing’s Sarcoma Family of Tumours Agents: Different chemotherapy regimens Phase  III Status  Open, recruiting Sponsor University of Birmingham   Further information: https://www.ucl.ac.uk/cancer/research/centres-and-networks/euro-ewing-consortium/clinical-trials/euro-ewing-2012/ee2012   WHO is the trial for?   Patients with diagnosed Ewing’s sarcoma, primitive…

ALT GIST

Sep 1, 2016 |

ALT GIST The ALT-GIST compares imatinib with an alternating regime of imatinib and regorafenib in patients with confirmed, metastatic GIST without previous therapy. The trial is currently open for participation in several countries. Agents: Imatinib alternating with Regorafenib vs. Imatinib alone Phase…

CABO GIST

Sep 1, 2016 |

CABO GIST Agents: Cabozantinib Phase II Status  Completed Sponsor EORTC   Further information: https://clinicaltrials.gov/ct/show/NCT02216578 or http://www.eortc.org/research_field/clinical-detail/1317/   WHO is the trial for? Patients with metastatic GIST (histologically confirmed) and removed primary tumor Patients with progression during treatment of GIST (before or after surgery,…

Mitigate

Sep 1, 2016 |

The Mitigate Project Agents: A novel PET-CT tracer specifically developed to target cell surface receptors of GIST cells Phase I/IIa Status  Open, recruiting Sponsor Medical University Innsbruck, European Union Further information: www.mitigate-project.eu WHO is the trial for?   Patients with progressive disease…

STRASS Trial

Sep 1, 2016 |

Surgery With or Without Radiation Therapy in Treating Patients With Previously Untreated Nonmetastatic Retroperitoneal Soft Tissue Sarcoma (STRASS) Agents: Radiation therapy followed by surgery vs. surgery alone Phase III Status  Open, recruiting Sponsor European Organisation for Research and Treatment of Cancer –…

SPAEN Advocacy in Action Award 2021

Sep 1, 2016 |

SPAEN Advocacy in Action Award 2021 announced for best projects in sarcoma patients advocacy Patient advocacy ensures that people are heard, take action and ultimately improve situations, achieve changes or help to fulfil unmet medical needs. We believe it is time to…

SPAEN Advocacy in Action Award 2018: The winners are… (2)

Sep 1, 2016 |

  Patient advocacy ensures that people are heard, take action and ultimately improve situations, achieve changes or help to fulfil unmet medical needs. The projects that were entered for the “Sarcoma Advocacy in Action Award 2018” once again showed this impressively! All…

SPAEN Advocacy in Action Award 2019: The winners are…

Sep 1, 2016 |

  Patient advocacy ensures that people are heard, take action and ultimately improve situations, achieve changes or help to fulfil unmet medical needs. The 12 projects that were entered for the “Sarcoma Advocacy in Action Award 2019” once again showed this impressively!…

Patient led PROMs must take centre stage in cancer research

Sep 1, 2016 |

by Roger Wilson, co-founder and honorary president of SPAEN and founder of Sarcoma UKResearch Involvement and Engagement, February 2018   Patient involvement in research is about adding value rather than commenting on technical quality. After 15 yearsas an involved patient in cancer…

Call to action: SPAEN Advocacy in Action Award 2019

Sep 1, 2016 |

SPAEN Advocacy in Action Award for best projects in sarcoma patients advocacy Patient advocacy ensures that people are heard, take action and ultimately improve situations, achieve changes or help to fulfil unmet medical needs. We believe it is time to shout out…