Blog & News
Sarcoma Research
Clinical studies are an essential step in the development of novel treatment methods for cancer and other diseases. Especially in rare cancers like sarcomas, clinical studies are an important component of treatment concepts, because here the standard forms of therapy are often…
Sarcoma Expertise
Sarcomas, being so rare and complex, belong in the hands of experts! Please find below some guidance on where to find information about diagnosis, treatment and care of sarcomas, but also about current developments in establishing European Reference Networks (ERNs) in order…
Patient Community
SPAEN is involved in a number of advocacy activities from raising public awareness of the challenges of sarcomas to advocating for equal access to promising new therapies to encouraging the establishment of sarcoma patient organizations in countries where they don’t yet exist.…
Networking
Why is it so important to collaborate? Sarcomas are rare and are also difficult to diagnose and treat. This leads to many and varying challenges for sarcoma patients, compared with more common cancers. Collaboration can be challenging. Partners with differing priorities and…
The Power of Patient Organisations
By Markus Wartenberg Cancer patient organisations around the world carry out enormously important work on behalf of patients and their families. Without them, the standard of care and support available to cancer patients would be severely compromised in some countries. Doctors and…
EU Certification
Sarcomas are rare and complex conditions which make specialized care mandatory. However, due to both the scarcity of expertise and the scattering of small patient populations across the EU, it can be challenging to provide this highly specialized care for all patients.…
Just published: New ESMO Guidelines for soft tissue sarcomas (2)
The updated ESMO-EURACAN-GENTURIS (European Society for Medical Oncology; European Reference Network for Rare Adult Solid Cancers; European Reference Network for Genetic Tumour Risk Syndromes) Clinical Practice Guidelines for Soft Tissue and Visceral Sarcomas have been published in Annals of Oncology at…
Just published: New ESMO Guidelines for soft tissue sarcomas
The updated ESMO-EURACAN-GENTURIS (European Society for Medical Oncology; European Reference Network for Rare Adult Solid Cancers; European Reference Network for Genetic Tumour Risk Syndromes) Clinical Practice Guidelines for Soft Tissue and Visceral Sarcomas have been published in Annals of Oncology at…